This week has been NHS Experience of Care Week, and on Wednesday evening there was a Twitter storm where patients, carers and health professionals were encouraged to share their evidence about experiences of care in the NHS, using the hashtag #ExpOfCare. Here’s a summary of my tweets and those of others with M.E. who have joined in this week.Read More »
My summary for Action for M.E. of the research published online in Proceedings of the National Academy of Sciences of the United States of America, and reported in UK press, which looked closely at the blood chemistry in people with M.E. with a research technique called “metabolomics”. New research: distinct biological differences in M.E.
I’m currently writing a resource with Action for M.E. for pharmacy teams, but as it’s M.E. awareness week and International Awareness Day today, here’s a post aimed at pharmacy teams with an introduction to M.E./CFS, a quick list of what community pharmacies can do to help their patients with M.E., and some resources for health professionals, such as the pharmaceutical management guidelines, at the end.
You might think you know about M.E. already but there are a lot of myths about the illness portrayed in the media. May is M.E. awareness month, so I thought I’d try to dispel some of these myths with the facts about the illness. Read More »
In March I interviewed Professor Davey Smith to find out what his specialism of epigenomics could bring to the UK CFS/M.E. Research Collaborative’s Grand Challenge and what this method of research could reveal about M.E.Read More »
On 24th March I took part in #pharmacy24, a 24-hour Twitter event to demonstrate the many diverse roles pharmacy professionals have, show how our roles are improving patient care and safety, and why pharmacy is an essential part of the NHS. Read More »
Johnathan Laird, 2015 regional winner for Scotland of the Royal Pharmaceutical Society’s I Love My Pharmacist competition, has kindly posted my comments about learning from patients and respecting them as empowered decision-makers about their health as a guest blog on the Pharmacy in Practice website.
Thank you for linking to Action for M.E., and for being so supportive of M.E. awareness campaigns, Johnathan.
There are some valuable lessons to be learnt from them. I was appalled to read that Alison’s GP asked her if she was “trying to collect illnesses”. Unfortunately, I’ve had similar experiences as a patient over the years with my M.E. and other health problems.
I hear the same from many of the people with chronic illnesses on social media. If someone has been spoken to like that when all they were doing was being an empowered patient then really, it’s no wonder people hide their medication problems and health concerns.
This can lead to complete avoidance of health services altogether. I fear the result of this could be that patients with genuine health problems may be putting up…
We’ve had lots of ideas and discussions about how I can use my skills and experience with the charity and now that we’ve had the chance to consolidate them, I want to tell you just what I’ll be doing in my role as Volunteer Pharmacist & Research Officer for Action for M.E.
I’m working with a national M.E. charity, Action for M.E., as Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E.
I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E. and addresses the issues pharmacy professionals need to know about our illness in order to make pharmacy services accessible and useful.Read More »
Previously, I’ve asked people with M.E. Please let me know how your pharmacy helps. So, as you’ve come to the intersection of M.E. patient and pharmacist, I thought I’d switch it! If you’re a pharmacy professional, what have you done for your patients with M.E.? Read More »