Sonya Chowdhury, CEO of Action for M.E., is taking part in Walk with M.E. and doubling her distance to walk on my behalf!
My summary for Action for M.E. of the research published online in Proceedings of the National Academy of Sciences of the United States of America, and reported in UK press, which looked closely at the blood chemistry in people with M.E. with a research technique called “metabolomics”. New research: distinct biological differences in M.E.
Yesterday I attended the most exciting event in my 2016 calendar – the launch of Action for M.E.’s new five-year strategy at Speakers House at the Houses of Parliament in London.
Today it’s one year since I started this blog, so I thought I’d make a list of the 10 most popular articles so far.
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I hope you’ve been paying attention throughout M.E. Awareness Month! Why not take this quick quiz to see how aware you are of the basic facts and figures about M.E.?
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I’m currently writing a resource with Action for M.E. for pharmacy teams, but as it’s M.E. awareness week and International Awareness Day today, here’s a post aimed at pharmacy teams with an introduction to M.E./CFS, a quick list of what community pharmacies can do to help their patients with M.E., and some resources for health professionals, such as the pharmaceutical management guidelines, at the end.
You might think you know about M.E. already but there are a lot of myths about the illness portrayed in the media. May is M.E. awareness month, so I thought I’d try to dispel some of these myths with the facts about the illness.
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In March I interviewed Professor Davey Smith to find out what his specialism of epigenomics could bring to the UK CFS/M.E. Research Collaborative’s Grand Challenge and what this method of research could reveal about M.E.Read More »
I’m looking for people with M.E. taking four or more regular prescription medicines to have a quick confidential chat to help me with a project.Read More »
As part of my work as Volunteer Pharmacist & Research Officer for Action for M.E., I write a short and easy to digest summary of a selection of the month’s published research papers.
Johnathan Laird, 2015 regional winner for Scotland of the Royal Pharmaceutical Society’s I Love My Pharmacist competition, has kindly posted my comments about learning from patients and respecting them as empowered decision-makers about their health as a guest blog on the Pharmacy in Practice website.
Thank you for linking to Action for M.E., and for being so supportive of M.E. awareness campaigns, Johnathan.
THANK you to Alison and Ian for sharing their stories in the article: Non-adherence and the things that people don’t tell us about their medicines! even though it’s not their names.
There are some valuable lessons to be learnt from them. I was appalled to read that Alison’s GP asked her if she was “trying to collect illnesses”. Unfortunately, I’ve had similar experiences as a patient over the years with my M.E. and other health problems.
I hear the same from many of the people with chronic illnesses on social media. If someone has been spoken to like that when all they were doing was being an empowered patient then really, it’s no wonder people hide their medication problems and health concerns.
This can lead to complete avoidance of health services altogether. I fear the result of this could be that patients with genuine health problems may be putting up…
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I’ve started using Paper.li to automatically publish a weekly paper on Friday evenings made up of the news and research articles I’ve tweeted during the previous week.
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I’m working with a national M.E. charity, Action for M.E., as Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E.
I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E. and addresses the issues pharmacy professionals need to know about our illness in order to make pharmacy services accessible and useful.Read More »
My blog post Please let me know how your pharmacy helps has generated lots of useful comments. As the next step in preparing the resource for pharmacists I’m working on with Action for M.E., I’m asking what you’d like to see in the resource as it’s important to me to have your views on it.Read More »
I thought I’d bring together some of the discussions I’ve had on Twitter today about writing accessible blog posts for people with M.E. Yes – a blog post about blog posts!Read More »