Articles about general health and wellbeing topics written for people with M.E.
N.B. If you have a specific query about your health, please see your own Pharmacist or GP and do not stop taking your medication without speaking to them about any problems you may be having.
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Activated patient, CCG, Care plan, Person-centred care, Reablement, Safeguarding, Self-management…there’s a lot of jargon in health and social care! This great A-to-Z from Think Local Act Personal is good to have handy: Care and Support Jargon Buster
NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?
In preparation for a talk I gave about what it’s like living with pain, I asked a few questions on my blog to see what other people experience. Here’s a round-up of the answers people gave.
Thank you to all those who shared their experiences with me. 32 people took part and I’m grateful for the time and energy you spent.Read More »
In my talk Living With Pain on 7th February, I referred to several studies and other resources. Here are links to these and some additional ones on living with pain and hidden chronic illness, and improving our care. Read More »
Living with a long term condition affects every minute of the day, every activity, and they require so much effort and planning to manage. A study on this came up with a marvellous infographic – a must see for health professionals to understand this burden.Read More »
Where to find information and support on M.E. Read More »
Not sure who to ask about a new symptom or health problem? Read More »
How can we become more empowered, and what do health professionals need to know to enable this?Read More »
Being awarded PIP at long last has opened up lots of other help such as travel cards, a blue badge and discounts for those who help me when I’m out and about.Read More »
Great quick blog explaining to healthy folks how our rest isn’t by choice and it’s not even a “duvet day”, it’s because we’re too ill to do anything, and trying to will result in even worse symptoms. Having a chronic illness isn’t a chilled out lifestyle choice, it’s debilitating.
I’ll make this quick for reasons that will become apparent. I wrote yesterday about putting myself into ‘Standby’ mode.I realised that I could’ve done a better job of explaining that after people told me to enjoy my rest and relaxing time, and that I’ve earned it.
I’m not managing to do a great deal this weekend and I’m mostly lying about in bed. If you have a busy life working or parenting or whatever, then that might sound ike an attractive proposition. However, I’m not happily ‘chilling out’. I’m stuck in bed because my body isn’t capable of doing much else at the moment. It’s frustrating, dull and impractical. Alas, it’s not fun.
My symptoms are numerous and can vary wildly at any given time. This weekend’s particular version of ‘standby’ mode essentially involves feeling really ‘shite’, due to nausea, pain, palpitations and breathlessness, and with fatigue, some unsteadiness and…
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A Prescription for M.E. 