For #WorldMentalHealthDay this year I’ve written about PTSD in general, and then more specifically about trauma due to experiences as patients with chronic illness.Read More »
When I shared this article from The Mighty on Twitter it seemed to resonate with others going through a tough time, so I thought I’d share it on my blog too. I recommend signing up to The Mighty’s email list as they’re always great articles by people living with chronic illness. 10 Things to Remember When […]
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
It’s the start of the 2016/17 flu season and people with M.E. and carers may be eligible for the free vaccination at pharmacies and GP surgeries, so I have updated my original blog post with this year’s information.
Here’s a helpful article about the disbelief, denial, anger, guilt and overwhelming sadness we can feel. Read the article and see my Sources of help & information page if you’re struggling with grief and need support.
An article by Action for M.E.’s medical advisers, with a reminder to always get new symptoms checked out. If you’re not sure, ask your pharmacist for advice, as they’re trained to know when something can be treated yourself or whether a trip to your GP is needed. Dear doctor: acid reflux
The NHS changed in 2013 and it’s pretty complicated. Here are some infographics on how the health organisations work together and which ones are responsible for what.Read More »
If your M.E. causes communication difficulties and problems with understanding or remembering information, health and social care providers in England now have a legal obligation to help make this easier for you.Read More »
As Twitter pharmacist friend Johnathan and some of my blog readers have posted theirs too, I thought I’d join in and post my #scarfie!
It’s common for people with long term conditions to be living with more than one of them and I know there are several of us with both M.E. and asthma. The #scarfie hashtag is to raise awareness of asthma and you can read more about it below Johnathan’s photo and on Asthma UK’s website here.
Let me know if you’ve posted your own #scarfie on social media and I’ll link to it 🙂
December 3rd is the UN’s International Day of Persons with Disabilities. This year one of the sub-themes is ‘Including persons with invisible disabilities in society and development.’ Here’s an infographic with stats, symptoms and common misconceptions about invisible disabilities.Read More »
I’ve been asking on social media for your tips for keeping warm in the winter months with M.E. and have had some great suggestions, which I’ve summarised here.Read More »
Action for M.E. responds to the headline as “entirely inaccurate and potentially damaging” and NHS Choices News uncovers what the follow-up study 5 years on from the PACE trial really shows, and more importantly what it doesn’t.Read More »
Action for M.E. have announced the exciting news that renowned M.E. researcher, Prof Julia Newton, and retired M.E. specialist, Dr Gregor Purdie, will share the role of medical adviser to the charity. They jointly take over the role from Dr Alistair Miller, who has been the charity’s medical adviser since 2006.Read More »
10th October, was World Mental Health Day. To mark the day, I decided to write about depression in M.E. and other physical long term conditions.
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Whether people with M.E. can give blood is a question I’ve been asked both on and offline and I’ve seen a lot of discussions about this lately on Twitter. 8th-14th June was National Blood Week 2015 and a campaign by NHS Blood and Transplant (NHSBT), #MissingType, appealed for more donors. Read More »