As you may be aware, NICE is reviewing its guideline for CFS/M.E. As part of this, they have asked patients to complete a survey on their experiences of cognitive behavioural therapy and graded exercise therapy to help inform their new guideline.
Category: Archive
Articles on subjects that have now expired, such as awareness days, competitions, and surveys.
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Double your donations to Action for M.E. this week!
All this week, between noon Tuesday 27 November and noon Tuesday 4 December 2018, Big Give donations to Action for M.E. will be doubled.
Living with pain – please share your experiences
On February 7th, 2018, I will be giving a presentation on living with pain at a study day for pharmacy professionals at Guy’s Hospital, London. I’d like to include other people’s experiences as well as my own, so please comment, whichever chronic pain condition(s) you may live with.
Hosting M.E. essentials webinar for health professionals
On Thursday 30th of November I will be hosting a webinar for health professionals on behalf of Action for M.E. and I’d like you to get involved.
Sign the petition to review the NICE guideline for CFS/M.E.
Although there might not be a new treatment to add to the NICE guideline for CFS/M.E., there’s more to healthcare than cures. NICE has decided that the guideline won’t be reviewed, even though it is 10 years old. This decision has gone out to consultation for the next 2 weeks. Just as NICE decide not to review their recommendations, the Centre for Disease Control and Prevention in the US removes CBT & GET as its recommended treatments for M.E./CFS.Read More »
Get tweeting for Experiences of Care Week 20th-24th March!
This week is Experience of Care Week, which is a week for the NHS to focus on improving the experience of patients. You can join in by sharing your experiences and opinions with the hashtag #ExpOfCare.
NHS prescription charges survey
In August last year I wrote about the Prescription Charges Coalition campaign to make prescription charges fairer for those with long term conditions. There’s now a survey to help with the campaign.Read More »
Enter your pharmacy for the Carers Flu-fighters Award
NHS Employers want to hear about flu-fighter teams who have engaged with people who look after a loved one, and promoted their right to a free flu vaccination.
Sonya’s million steps challenge plus my million too!
Sonya Chowdhury, CEO of Action for M.E., is taking part in Walk with M.E. and doubling her distance to walk on my behalf!
Tell the NHS your experiences with health information and communication
Six months ago NHS England launched its Accessible Information Standard (AIS) and they are asking the public and health professionals whether they have used the AIS and if there have been any problems.
A Prescription for M.E. 