As you may be aware, NICE is reviewing its guideline for CFS/M.E. As part of this, they have asked patients to complete a survey on their experiences of cognitive behavioural therapy and graded exercise therapy to help inform their new guideline.
On February 7th, 2018, I will be giving a presentation on living with pain at a study day for pharmacy professionals at Guy’s Hospital, London. I’d like to include other people’s experiences as well as my own, so please comment, whichever chronic pain condition(s) you may live with.
On Thursday 30th of November I will be hosting a webinar for health professionals on behalf of Action for M.E. and I’d like you to get involved.
Although there might not be a new treatment to add to the NICE guideline for CFS/M.E., there’s more to healthcare than cures. NICE has decided that the guideline won’t be reviewed, even though it is 10 years old. This decision has gone out to consultation for the next 2 weeks. Just as NICE decide not to review their recommendations, the Centre for Disease Control and Prevention in the US removes CBT & GET as its recommended treatments for M.E./CFS.Read More »
NHS Employers want to hear about flu-fighter teams who have engaged with people who look after a loved one, and promoted their right to a free flu vaccination.
Sonya Chowdhury, CEO of Action for M.E., is taking part in Walk with M.E. and doubling her distance to walk on my behalf!
Six months ago NHS England launched its Accessible Information Standard (AIS) and they are asking the public and health professionals whether they have used the AIS and if there have been any problems.