My name is Emily and I’m a pharmacist in the UK. I blog about health, taking medication, research, and pharmacy services for people with M.E. I also write about the projects I work on and my voluntary work as Pharmacist & Research Officer for Action for M.E. Read on to find out more about my M.E. story.Read More »
This week has been NHS Experience of Care Week, and on Wednesday evening there was a Twitter storm where patients, carers and health professionals were encouraged to share their evidence about experiences of care in the NHS, using the hashtag #ExpOfCare. Here’s a summary of my tweets and those of others with M.E. who have joined in this week.Read More »
Last month, New Scientist ran a feature on research findings of energy metabolism abnormalities in people with M.E. Although this is the same research published elsewhere, it’s great to see it in a mainstream science mag. Read the New Scientist article
Here’s an opportunity to get M.E. and other long term conditions you may have on the map if you live in Yorkshire and there are some interesting results so far on chronic pain and health inequalities.Read More »
NHS Employers want to hear about flu-fighter teams who have engaged with people who look after a loved one, and promoted their right to a free flu vaccination.
Scientific overview of the drug research updates given at the International Association for CFS/ME 2016 conference, written by Cort Johnson.The drugs mentioned are rituximab, cyclophosphamide, desmopressin, low-dose naltrexone, rintatolimod (Ampligen), and some supplements. Heard through @firestormmer. Read Treating ME/CFS: The IACFS/ME Conference Overviews – Part V
2016 was a bumper year for M.E. research, so what needs to happen next to ensure this progress is built upon to improve the lives of the 17 million people with M.E. worldwide?
Sonya Chowdhury, CEO of Action for M.E., is taking part in Walk with M.E. and doubling her distance to walk on my behalf!
Six months ago NHS England launched its Accessible Information Standard (AIS) and they are asking the public and health professionals whether they have used the AIS and if there have been any problems.
This informative and thought-provoking 17 minute TEDtalk was given by M.E. campaigner Jen Brea on becoming ill and the attitudes she encountered.
There’s a big difference between us feeling like we have zero energy and that actually being the problem within our cells but the link between our symptoms and the underlying processes in M.E. is becoming clearer.Read More »
The new website for the ME/CFS Epidemiology and Genomics Alliance (MEGA) biomedical research study has been launched today. There are lots of strong opinions about this project so get involved and make it the research we really need.
This Thursday (3rd November) there’s a pharmacy Twitter chat about using smartphones, apps and social media for help with medication, so I thought readers might like to contribute.
I came across this writing competition on Twitter which might be of interest to people with experience of using or working in the NHS.Read More »
September’s M.E. research round-up covers articles on: Post-exertional malaise, Presence of abnormal biological findings relates to quality of life, Infections prior to development of CFS/M.E. in children, HPV vaccine side effects. Read September’s research round-up
For #WorldMentalHealthDay this year I’ve written about PTSD in general, and then more specifically about trauma due to experiences as patients with chronic illness.Read More »
When I shared this article from The Mighty on Twitter it seemed to resonate with others going through a tough time, so I thought I’d share it on my blog too. I recommend signing up to The Mighty’s email list as they’re always great articles by people living with chronic illness. 10 Things to Remember When […]