The M.E./CFS guide for community pharmacy teams which I have been working on with Action for M.E. is now available online.
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My name is Emily and I’m a pharmacist in the UK. I blog about health, taking medication, research, and pharmacy services for people with M.E. I also write about the projects I work on and my voluntary work as Pharmacist & Research Officer for Action for M.E. Read on to find out more about my M.E. story.Read More »
Activated patient, CCG, Care plan, Person-centred care, Reablement, Safeguarding, Self-management…there’s a lot of jargon in health and social care! This great A-to-Z from Think Local Act Personal is good to have handy: Care and Support Jargon Buster
NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?Read More »
On May 12th every year since 1937, UK citizens have been contributing a diary to the Mass Observation Archive. This year there’s a special focus on people with M.E.Read More »
It’s M.E. awareness month, and we’ve been taking #ThisisME selfies describing how our M.E. affects us.
Taking part in this campaign and sharing other people’s #ThisisME selfies has made me reflect on how far I’ve come but there are so many more people still experiencing severe M.E., unable to do everyday things for themselves and being house- or bed-bound.Read More »
This M.E. research round-up covers studies published from 17 January 2018 to 16 March 2018: Autoimmunity and M.E./CFS, Blood volume: potential sub-group, Developing a diagnostic test, Accelerated cell ageing in women with CFS, No link between childhood adversity and CFS, A challenge to the cognitive behavioural model. Read the research round-up
In preparation for a talk I gave about what it’s like living with pain, I asked a few questions on my blog to see what other people experience. Here’s a round-up of the answers people gave.
Thank you to all those who shared their experiences with me. 32 people took part and I’m grateful for the time and energy you spent.Read More »
In my talk Living With Pain on 7th February, I referred to several studies and other resources. Here are links to these and some additional ones on living with pain and hidden chronic illness, and improving our care. Read More »
Living with a long term condition affects every minute of the day, every activity, and they require so much effort and planning to manage. A study on this came up with a marvellous infographic – a must see for health professionals to understand this burden.Read More »
On 30th November last year, I presented a webinar on behalf of Action for M.E. called Meeting the needs of people with M.E./CFS: essential facts and practical tips, giving an introduction to M.E./CFS for health professionals. We have now received the feedback surveys.Read More »