This is a collection of the sources of support I regularly signpost people with M.E. and their loved ones to when listening to friends on social media. It’s by no means an exhaustive list of help available but may be a useful place to start if you or a friend have a problem.
Important note: Giving personal advice isn’t part of my role with Action for M.E., so please see your own pharmacist or GP about your health problems and medication. Don’t stop taking medication without speaking to your prescriber about any problems you may be having.
Activated patient, CCG, Care plan, Person-centred care, Reablement, Safeguarding, Self-management…there’s a lot of jargon in health and social care! This great A-to-Z from Think Local Act Personal is good to have handy: Care and Support Jargon Buster
Sometimes I am asked by people with M.E. for information for their health professionals. Here are links to resources which you could pass on to them. Read More »
Where to find information and support on M.E. Read More »
Standing up for our rights can be difficult when we’re ill, so here are some resources on getting our healthcare, social care, benefits, housing, and employment needs met. Always remember that M.E. is classed as a disability by the Equality Act 2010 and we have rights.Read More »
Pharmacies can be a good first port of call without the need for an appointment, as pharmacists are trained to recognise symptoms and help you decide what the appropriate course of action should be. This can be helpful if you’re not sure whether you need to see a doctor or if you have trouble getting appointments. They can also give you advice about your medication, such as side effects, safety of over-the-counter medication, and seasonal health advice.Read More »
Everyone has the right to get the most out of social media whilst also taking actions to feel safe. Here are some resources on protecting ourselves and coping when social media stops feeling safe. Read More »
It can be difficult to cope with the emotional impact of long term illness, and there’s nothing wrong with needing help with this from time to time.Read More »
Not sure who to ask about a new symptom or health problem? Read More »
A carer can be a partner, relative or friend of any age, who looks after someone unable to look after themselves on an unpaid basis.Read More »
We need all the help we can get when applying for benefits, so here are some useful resources.Read More »
A Prescription for M.E. 