Standing up for our rights

Standing up for our rights can be difficult when we’re ill, so here are some resources on getting our healthcare, social care, benefits, housing, and employment needs met. Always remember that M.E. is classed as a disability by the Equality Act 2010 and we have rights. All links open in a new tab.

Nothing about M.E. without me: self-advocacy resource
All your rights on healthcare, social care, benefits, housing, and employment, along with advice on communicating effectively to get your needs met, including how to make a complaints.

“M.E. and work” booklet download
Advice on working with M.E., legal information, the Equality Act 2010, reasonable adjustments, if working isn’t working, looking for work and money matters.

Patient Advice and Liaison Service (PALS)
PALS offers confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers. They can also help resolve concerns or problems when you’re using the NHS.

Action for M.E.’s Welfare Benefits page 
This page has factsheets for applying for each benefit when you have M.E., along with reconsiderations and appeals.

Action for M.E.’s Welfare Advice and Support Service
In addition to the above, Action for M.E. also has a service which provides advice on welfare benefits, disability discrimination and employment issues to people affected by M.E. over the phone.

Citizens Advice Bureau 
Advice on your rights, debts, budgeting, benefits and finding your local CAB.

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