This M.E. research round-up covers studies published up to 16 June 2017: The genetics of fatigue, Sleep patterns in teenagers with CFS, Sub-groups by comorbidities, Gut bacteria and irritable bowel syndrome in M.E./CFS, Similarities with other neurological illness, Experiences of healthcare: two studies. Read the research round-up
This M.E. research round-up covers the following studies: Faulty pain receptors, What can cerebrospinal fluid tell us? Reporting on M.E./CFS in the media. Read the research round-up
This M.E. research round-up covers the following studies: Potential blood test, Brain function worsens after exercise, Trial of an arthritis drug, Recovery experiences. Read the research round-up
Last month, New Scientist ran a feature on research findings of energy metabolism abnormalities in people with M.E. Although this is the same research published elsewhere, it’s great to see it in a mainstream science mag. Read the New Scientist article
Scientific overview of the drug research updates given at the International Association for CFS/ME 2016 conference, written by Cort Johnson.The drugs mentioned are rituximab, cyclophosphamide, desmopressin, low-dose naltrexone, rintatolimod (Ampligen), and some supplements. Heard through @firestormmer. Read Treating ME/CFS: The IACFS/ME Conference Overviews – Part V
2016 was a bumper year for M.E. research, so what needs to happen next to ensure this progress is built upon to improve the lives of the 17 million people with M.E. worldwide?
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There’s a big difference between us feeling like we have zero energy and that actually being the problem within our cells but the link between our symptoms and the underlying processes in M.E. is becoming clearer.Read More »
September’s M.E. research round-up covers articles on: Post-exertional malaise, Presence of abnormal biological findings relates to quality of life, Infections prior to development of CFS/M.E. in children, HPV vaccine side effects. Read September’s research round-up
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
My summary for Action for M.E. of the research published online in Proceedings of the National Academy of Sciences of the United States of America, and reported in UK press, which looked closely at the blood chemistry in people with M.E. with a research technique called “metabolomics”. New research: distinct biological differences in M.E.