My blog from the intersection of patient & pharmacist
Articles about research in general and M.E. research, along with links to the short and easily digested monthly M.E. research round-ups I write as part of my work as Volunteer Pharmacist & Research Officer for Action for M.E.
Last month, New Scientist ran a feature on research findings of energy metabolism abnormalities in people with M.E. Although this is the same research published elsewhere, it’s great to see it in a mainstream science mag. Read the New Scientist article
Scientific overview of the drug research updates given at the International Association for CFS/ME 2016 conference, written by Cort Johnson.The drugs mentioned are rituximab, cyclophosphamide, desmopressin, low-dose naltrexone, rintatolimod (Ampligen), and some supplements. Heard through @firestormmer. Read Treating ME/CFS: The IACFS/ME Conference Overviews – Part V
There’s a big difference between us feeling like we have zero energy and that actually being the problem within our cells but the link between our symptoms and the underlying processes in M.E. is becoming clearer.Read More »
September’s M.E. research round-up covers articles on: Post-exertional malaise, Presence of abnormal biological findings relates to quality of life, Infections prior to development of CFS/M.E. in children, HPV vaccine side effects. Read September’s research round-up
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
My summary for Action for M.E. of the research published online in Proceedings of the National Academy of Sciences of the United States of America, and reported in UK press, which looked closely at the blood chemistry in people with M.E. with a research technique called “metabolomics”. New research: distinct biological differences in M.E.
July’s M.E. research round-up covers studies on: New theory for the underlying mechanism in neurological conditions, Brain scans in teenagers with CFS, Muscle strain worsens symptoms in CFS, Mast cells in moderate and severe CFS/M.E., Blood volume in CFS. Read July’s research round-up
Today the UK government responded to a petition calling for more investment into M.E./CFS research. I’ve included a summary of the response, a run down of the current projects by the MRC to encourage more research, and links to research news.
The Royal Pharmaceutical Society’s professional publication, Pharmaceutical Journal, has run a feature on the rituximab trials and how these could be revealing the underlying mechanisms of the illness.
June’s M.E. research round-up covers studies on: M.E. should now be a “solvable” problem, Potential biomarker for fatigue, A review of studies on medication for M.E. Immune system cells and their calcium channels in CFS. Read June’s research round-up
May’s M.E. research round-up covers studies on: Brain changes in CFS over time, The immune system, Genetics and cell receptors, Predicting those at risk of CFS, Long-term high exercise levels do not lead to post-viral fatigue, Relationship between age and illness duration, Hormones controlling the nervous system. Read May’s research round-up
In March I interviewed Professor Davey Smith to find out what his specialism of epigenomics could bring to the UK CFS/M.E. Research Collaborative’s Grand Challenge and what this method of research could reveal about M.E.Read More »
April’s M.E. research round-up covers studies on: Similarities and differences in CFS/M.E. and MS, Cognitive difficulties in CFS, How do women with CFS/M.E. rate their healthcare? Online patient communities as social movements for change. Read April’s research round-up
March’s M.E. research round-up covers studies on: Early study into possible blood test for CFS/M.E., Biomarkers used to develop blood tests may change as M.E./CFS progresses, How might scientists select people to take part in CFS research? Read May’s research round-up
February’s M.E. research round-up covers studies on: Brain activity characteristics in CFS patients, CFS symptom-based sub-groups/phenotypes, Genetic variations in subjects M.E./CFS, Mitochondrial DNA variants. Read May’s research round-up