How can we become more empowered, and what do health professionals need to know to enable this?Read More »
Although there might not be a new treatment to add to the NICE guideline for CFS/M.E., there’s more to healthcare than cures. NICE has decided that the guideline won’t be reviewed, even though it is 10 years old. This decision has gone out to consultation for the next 2 weeks. Just as NICE decide not to review their recommendations, the Centre for Disease Control and Prevention in the US removes CBT & GET as its recommended treatments for M.E./CFS.Read More »
Here’s an opportunity to get M.E. and other long term conditions you may have on the map if you live in Yorkshire and there are some interesting results so far on chronic pain and health inequalities.Read More »
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
Find out what you can do right now to make someone you know with M.E. feel more included and less isolated.Read More »
I’ve written this blog to explain what the NHS Friends and Family Test is, and how we can use this to give feedback on our experiences of using the NHS.
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I’ve blogged about three ways we can have our say about M.E. treatment in the UK, so I thought I’d make a summary.Read More »