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A Prescription for M.E.

Insights from the intersection of patient & pharmacist

Category: Get involved

Current and ongoing opportunities for us to get involved with campaigns, charities, the NHS, and research for better treatments and healthcare for people with M.E. in the UK. The majority of these are online surveys to make it easier to participate and help get M.E. on the map in the UK when the public are asked for their opinions or experiences.

Subscribe to my blog and receive an email when more opportunities are added >>>

Contact me to let me know about a UK opportunity to include >>>

View opportunities which have now expired in my blog archive >>>

The Big Survey on living with M.E./CFS

LinkJul 15, 2019Jul 15, 2019 Emily BeardallLeave a comment

Action for M.E.’s Big Survey on living with M.E./CFS in the UK asks about our experiences with health, education, employment and welfare benefits. Our answers will influence their strategy and inform their work for the next five years. The deadline for completing the survey is Friday 2 August 2019. Go to the survey

NHS England online GP appointments survey

May 16, 2018Jun 8, 2018 Emily BeardallLeave a comment

NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?

Read More »

Mass Observation Archive to include diaries from people with M.E. – join in!

May 12, 2018May 16, 2018 Emily BeardallLeave a comment

On May 12th every year since 1937, UK citizens have been contributing a diary to the Mass Observation Archive. This year there’s a special focus on people with M.E.Read More »

More power to you: M.E. patients found to be the least empowered

Jul 18, 2017Jul 18, 2017 Emily Beardall1 Comment

How can we become more empowered, and what do health professionals need to know to enable this?Read More »

Take part in the Yorkshire Health Study

Mar 6, 2017May 16, 2018 Emily BeardallLeave a comment

Yorkshire Health Study

Here’s an opportunity to get M.E. and other long term conditions you may have on the map if you live in Yorkshire and there are some interesting results so far on chronic pain and health inequalities.Read More »

Research and healthcare must involve people with M.E. to move forward

Sep 28, 2016May 24, 2017 Emily BeardallLeave a comment

STOP COLLABORATE AND LISTENThere’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »

Making decisions about our health

Sep 21, 2016Jun 28, 2017 Emily BeardallLeave a comment

Question marksResearch shows that if we make decisions about our health ourselves, there will be better outcomes for us. In this blog post I look at UK health policy on this and what to consider when making health decisions.

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Prescription Charges Coalition campaign for free prescriptions

Aug 10, 2016May 16, 2018 Emily BeardallLeave a comment

Prescription Charges Coalition logoA campaign has been launched by a group of organisations calling for an end to prescription charges in England for working people with long term conditions.

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What can you do to help someone with M.E. feel less isolated?

May 10, 2016May 10, 2016 Emily Beardall4 Comments

#DontIgnoreMEFind out what you can do right now to make someone you know with M.E. feel more included and less isolated.Read More »

Giving feedback about our healthcare: The NHS Friends and Family Test

Mar 14, 2016May 25, 2016 Emily Beardall2 Comments

Information for patients on the Friends and Family TestI’ve written this blog to explain what the NHS Friends and Family Test is, and how we can use this to give feedback on our experiences of using the NHS.
Read More »

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Welcome to my blog

  • About me and my blog
  • Index of all blog articles
  • Subscribe to my blog
  • Archive of old blog articles
  • Guidelines for comments
  • Contact me

Recent articles

  • The Big Survey on living with M.E./CFS Jul 15, 2019
  • NICE CBT and GET patient survey Jan 26, 2019
  • Double your donations to Action for M.E. this week! Nov 27, 2018
  • Latest plain English M.E. research round-up Nov 9, 2018
  • Latest plain English M.E. research round-up Jun 8, 2018

Trending articles

  • Essential M.E./CFS facts infographic for pharmacy teams
  • Hidden faces of M.E. guest blog by Russell Fleming: My early struggles with M.E.
  • Guest blog: Spoonie Survival Kits, little bags of happiness to send friends with chronic illness

Useful articles

  • Health and social care jargon buster
  • M.E. information and support
  • Standing up for our rights
  • Pharmacy information
  • Making decisions about our health
  • How the NHS works
  • Help with prescription costs in England
  • Help with communication and information: NHS England’s Accessible Information Standard
  • Support from your pharmacy if you’re an unpaid carer
  • Keeping as well as possible with M.E. in hot weather
  • Tips from others with M.E. for remembering to take medication

Featured articles

  • M.E./CFS guide for pharmacy teams launched
  • 2016 round-up and what’s next for M.E. research?
  • Do you really know about M.E.? Test yourself with this quiz!
  • 10 myths about M.E….busted!
  • About my work as Volunteer Pharmacist & Research Officer with Action for M.E.

Please donate

If you’ve found my blog interesting and helpful, please consider donating to the charity I volunteer with:

JustGiving - Sponsor me now!

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