This week is Experience of Care Week, which is a week for the NHS to focus on improving the experience of patients. You can join in by sharing your experiences and opinions with the hashtag #ExpOfCare.
Here’s an opportunity to get M.E. and other long term conditions you may have on the map if you live in Yorkshire and there are some interesting results so far on chronic pain and health inequalities.Read More »
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
Find out what you can do right now to make someone you know with M.E. feel more included and less isolated.Read More »
I’ve written this blog to explain what the NHS Friends and Family Test is, and how we can use this to give feedback on our experiences of using the NHS.
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I’ve blogged about three ways we can have our say about M.E. treatment in the UK, so I thought I’d make a summary.Read More »
The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.Read More »
There are now 2 opportunities for the UK general public to have our say about treatment in the NHS: the Accelerated Access Review and NHS Citizen Gather. These aren’t exclusive to M.E. but I think they’re opportunities we should take.Read More »
I’ll be writing my blog posts for people with M.E. and for my colleagues in the Pharmacy profession based on the facts and I will assume (take for granted) that everyone automatically knows M.E. is a neurological illness.Read More »
I’ve started off my new blog with a “good news” story about M.E. awareness from Norway as this is a fitting end to a successful M.E. awareness month.Read More »