Current and ongoing opportunities for us to get involved with campaigns, charities, the NHS, and research for better treatments and healthcare for people with M.E. in the UK. The majority of these are online surveys to make it easier to participate and help get M.E. on the map in the UK when the public are asked for their opinions or experiences.
Subscribe to my blog and receive an email when more opportunities are added >>>
Contact me to let me know about a UK opportunity to include >>>
View opportunities which have now expired in my blog archive >>>
As you may be aware, NICE is reviewing its guideline for CFS/M.E. As part of this, they have asked patients to complete a survey on their experiences of cognitive behavioural therapy and graded exercise therapy to help inform their new guideline.
NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?
On May 12th every year since 1937, UK citizens have been contributing a diary to the Mass Observation Archive. This year there’s a special focus on people with M.E.Read More »
How can we become more empowered, and what do health professionals need to know to enable this?Read More »
Here’s an opportunity to get M.E. and other long term conditions you may have on the map if you live in Yorkshire and there are some interesting results so far on chronic pain and health inequalities.Read More »
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
Research shows that if we make decisions about our health ourselves, there will be better outcomes for us. In this blog post I look at UK health policy on this and what to consider when making health decisions.
A campaign has been launched by a group of organisations calling for an end to prescription charges in England for working people with long term conditions.
Find out what you can do right now to make someone you know with M.E. feel more included and less isolated.Read More »
I’ve written this blog to explain what the NHS Friends and Family Test is, and how we can use this to give feedback on our experiences of using the NHS.
Read More »
