Browse the categories of my blog at the top of the page or you can view all the blog posts below. You can also use the tags on the right hand side to see all articles related to those topics. Archived blog posts can be found here
Health
Articles about general health topics for people with M.E.
- Health and social care jargon buster
- NHS England online GP appointments survey
- Shared experiences of living with pain
- Resources for professionals for understanding living with long term conditions
- The burden of long term condition management
- M.E. information and support
- Health and medication queries
- More power to you: M.E. patients found to be the least empowered
- Making the most of PIP
- Reblogged: Enforced rest vs chill out time
- #WorldMentalHealthDay: Trauma and chronic illness
- 10 Things to Remember When It Seems Like Things Won’t Get Better | The Mighty
- Research and healthcare must involve people with M.E. to move forward
- Flu and the flu vaccination
- What Doctors Should Tell You About Grief With a Chronic Disease | The Mighty
- Making decisions about our health
- Dear doctor: acid reflux | InterAction
- How the NHS works
- Help with communication and information: NHS England’s Accessible Information Standard
- Reblogged: If you are asthmatic in winter it’s a #scarfie not #selfie!!
Medication
Tips and information about medication used by people with M.E.
N.B. If you have a specific query about your own medication, please see your own Pharmacist or GP and do not stop taking your medication without speaking to them about any problems you may be having.
Pharmacy Services
Information for people with M.E. about pharmacy and using pharmacy services.
- Shared experiences of living with pain
- Resources for professionals for understanding living with long term conditions
- The burden of long term condition management
- #pharmacywinter action day
- The role of pharmacy technicians in the care of people with M.E./CFS
- me + my medicines charter launch
- Pharmacy information
- Pharmacy M.E./CFS resource makes it into pharmacy news!
- Essential M.E./CFS facts infographic for pharmacy teams
- M.E./CFS guide for pharmacy teams launched
- Independent pharmacist explains the impact of the pharmacy cuts | Pharmacy Talk
- World Pharmacists Day 2016: #GoGreen4PS
- Flu and the flu vaccination
- What does my pharmacist do with my prescription?
- Help with prescription costs in England
- Prescription Charges Coalition campaign for free prescriptions
- Help with communication and information: NHS England’s Accessible Information Standard
- Support from your pharmacy if you’re an unpaid carer
- #pharmacy24 highlights – what do pharmacy teams actually do?
- #pharmacy24 – my M.E. tweets for the pharmacy Twitter event
Research
Articles about M.E. drug research and development, along with relevant pharmaceutical industry news.
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- The burden of long term condition management
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- Latest plain English M.E. research round-up
- April’s plain English M.E. research round-up
- Metabolic switch may bring on chronic fatigue syndrome | New Scientist
- Treating ME/CFS: IACFS/ME Conference Overview | Health Rising
- 2016 round-up and what’s next for M.E. research?
- Not just tired: further research suggests cell energy production impaired in M.E.
- September’s plain English M.E. research round-up
- Research and healthcare must involve people with M.E. to move forward
- New research: distinct biological differences in M.E.
- August’s plain English M.E. research round-up
- July’s plain English M.E. research round-up
- UK government responds to petition by M.E. patients for more research
Get Involved
Positive campaigning, and opportunities for us to collaborate with charities, the NHS, and researchers for better treatments and services for people with M.E.
- The Big Survey on living with M.E./CFS
- NHS England online GP appointments survey
- Mass Observation Archive to include diaries from people with M.E. – join in!
- More power to you: M.E. patients found to be the least empowered
- Take part in the Yorkshire Health Study
- Research and healthcare must involve people with M.E. to move forward
- Making decisions about our health
- Prescription Charges Coalition campaign for free prescriptions
- What can you do to help someone with M.E. feel less isolated?
- Giving feedback about our healthcare: The NHS Friends and Family Test
- Best Foot Forward: How to make a difference with positive campaigning
- Help shape research in the NHS!
- We believe you, so crack on with it and collaborate!
Our stories
A collection of personal blog posts about our experiences as patients and how myalgic encephalomyelitis affects our lives.
Projects
Information about pharmacy projects, including those I am working on with Action for M.E.
- Shared experiences of living with pain
- Resources for professionals for understanding living with long term conditions
- “All health professionals would benefit from hearing Emily’s talk”
- Watch my M.E./CFS essentials webinar online
- Living with pain – please share your experiences
- Hosting M.E. essentials webinar for health professionals
- #pharmacywinter action day
- me + my medicines charter launch
- Pharmacy M.E./CFS resource makes it into pharmacy news!
- Essential M.E./CFS facts infographic for pharmacy teams
- M.E./CFS guide for pharmacy teams launched
- Improving the experience of care for people with M.E.
- I’ve joined @WePharmacists!
- New research: distinct biological differences in M.E.
- My exciting trip to London for the launch of Action for M.E.’s new strategy
- My blog’s 1st birthday: Top 10 articles so far
- Do you really know about M.E.? Test yourself with this quiz!
- Discover how pharmacy can help tackle health inequalities for people with M.E.
- 10 myths about M.E….busted!
- A new era in M.E. research: Interview with Grand Challenge epigenomics professor
A Prescription for M.E. 