As you may be aware, NICE is reviewing its guideline for CFS/M.E. As part of this, they have asked patients to complete a survey on their experiences of cognitive behavioural therapy and graded exercise therapy to help inform their new guideline.
Action for M.E.’s Big Survey on living with M.E./CFS in the UK asks about our experiences with health, education, employment and welfare benefits. Our answers will influence their strategy and inform their work for the next five years. The deadline for completing the survey is Friday 2 August 2019. Go to the survey
Activated patient, CCG, Care plan, Person-centred care, Reablement, Safeguarding, Self-management…there’s a lot of jargon in health and social care! This great A-to-Z from Think Local Act Personal is good to have handy: Care and Support Jargon Buster
NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?
In preparation for a talk I gave about what it’s like living with pain, I asked a few questions on my blog to see what other people experience. Here’s a round-up of the answers people gave.
Thank you to all those who shared their experiences with me. 32 people took part and I’m grateful for the time and energy you spent.Read More »
On 30th November last year, I presented a webinar on behalf of Action for M.E. called Meeting the needs of people with M.E./CFS: essential facts and practical tips, giving an introduction to M.E./CFS for health professionals. We have now received the feedback surveys.Read More »
On 30th November last year, I presented a webinar on behalf of Action for M.E., giving an introduction to M.E./CFS for health professionals. The webinar, Meeting the needs of people with M.E./CFS: essential facts and practical tips is now available to view online with the accompanying slides.Read More »
On Thursday 30th of November I will be hosting a webinar for health professionals on behalf of Action for M.E. and I’d like you to get involved.
Today is Pharmacy Technician Day so here’s a blog explaining what pharmacy technicians are and if you’re a technician, how you can support people with myalgic encephalomyelitis (M.E.), sometimes known as chronic fatigue syndrome.