I’ve written a case study on the difference the charity Pharmacist Support has made to me, to show how donations can transform the lives of pharmacists with disabilities. When I see other people in my situation, I feel very fortunate to belong to a profession that looks after peers who fall on hard times, especially when I see the love for the charity on social media and pharmacists’ fundraising challenges.
Great quick blog explaining to healthy folks how our rest isn’t by choice and it’s not even a “duvet day”, it’s because we’re too ill to do anything, and trying to will result in even worse symptoms. Having a chronic illness isn’t a chilled out lifestyle choice, it’s debilitating.
I’ll make this quick for reasons that will become apparent. I wrote yesterday about putting myself into ‘Standby’ mode.I realised that I could’ve done a better job of explaining that after people told me to enjoy my rest and relaxing time, and that I’ve earned it.
I’m not managing to do a great deal this weekend and I’m mostly lying about in bed. If you have a busy life working or parenting or whatever, then that might sound ike an attractive proposition. However, I’m not happily ‘chilling out’. I’m stuck in bed because my body isn’t capable of doing much else at the moment. It’s frustrating, dull and impractical. Alas, it’s not fun.
My symptoms are numerous and can vary wildly at any given time. This weekend’s particular version of ‘standby’ mode essentially involves feeling really ‘shite’, due to nausea, pain, palpitations and breathlessness, and with fatigue, some unsteadiness and…
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Yesterday I attended the most exciting event in my 2016 calendar – the launch of Action for M.E.’s new five-year strategy at Speakers House at the Houses of Parliament in London.
This is a guest blog for M.E. awareness month by Anna Wood, a severe ME veteran of 8 years and physics education researcher. Anna writes about how work defines our identity and how not being able to work due to M.E. affects this.Read More »
I went out for an early evening drink with a friend I hadn’t seen for ages.
That doesn’t sound all that unusual but for those of you with M.E., you’ll understand how out of reach such a normal activity can be for us. I’ve only had enough of an improvement in my symptoms to be able to do this again lately.Read More »