Action for M.E.’s Big Survey on living with M.E./CFS in the UK asks about our experiences with health, education, employment and welfare benefits. Our answers will influence their strategy and inform their work for the next five years. The deadline for completing the survey is Friday 2 August 2019. Go to the survey
It’s M.E. awareness month, and we’ve been taking #ThisisME selfies describing how our M.E. affects us.
Taking part in this campaign and sharing other people’s #ThisisME selfies has made me reflect on how far I’ve come but there are so many more people still experiencing severe M.E., unable to do everyday things for themselves and being house- or bed-bound.Read More »
In preparation for a talk I gave about what it’s like living with pain, I asked a few questions on my blog to see what other people experience. Here’s a round-up of the answers people gave.
Thank you to all those who shared their experiences with me. 32 people took part and I’m grateful for the time and energy you spent.Read More »
In my talk Living With Pain on 7th February, I referred to several studies and other resources. Here are links to these and some additional ones on living with pain and hidden chronic illness, and improving our care. Read More »
Living with a long term condition affects every minute of the day, every activity, and they require so much effort and planning to manage. A study on this came up with a marvellous infographic – a must see for health professionals to understand this burden.Read More »
On 30th November last year, I presented a webinar on behalf of Action for M.E. called Meeting the needs of people with M.E./CFS: essential facts and practical tips, giving an introduction to M.E./CFS for health professionals. We have now received the feedback surveys.Read More »
On 30th November last year, I presented a webinar on behalf of Action for M.E., giving an introduction to M.E./CFS for health professionals. The webinar, Meeting the needs of people with M.E./CFS: essential facts and practical tips is now available to view online with the accompanying slides.Read More »
On February 7th, 2018, I will be giving a presentation on living with pain at a study day for pharmacy professionals at Guy’s Hospital, London. I’d like to include other people’s experiences as well as my own, so please comment, whichever chronic pain condition(s) you may live with.
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Today is Pharmacy Technician Day so here’s a blog explaining what pharmacy technicians are and if you’re a technician, how you can support people with myalgic encephalomyelitis (M.E.), sometimes known as chronic fatigue syndrome.
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I’ve written a case study on the difference the charity Pharmacist Support has made to me, to show how donations can transform the lives of pharmacists with disabilities. When I see other people in my situation, I feel very fortunate to belong to a profession that looks after peers who fall on hard times, especially when I see the love for the charity on social media and pharmacists’ fundraising challenges.
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