NHS England are asking for the public’s views on having access to GP appointments online in the near future. Would they be helpful? Do you have any concerns about using them?
Tag: patient involvement
Resources for professionals for understanding living with long term conditions
In my talk Living With Pain on 7th February, I referred to several studies and other resources. Here are links to these and some additional ones on living with pain and hidden chronic illness, and improving our care. Read More »
me + my medicines charter launch
me + my medicines is a new communications charter which aims to improve the way we talk about medicines. The charter will be launched at a free event on Thursday 12th October in Leeds, and patients, carers and health professionals are invited to attend.Read More »
Research and healthcare must involve people with M.E. to move forward
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
April’s plain English M.E. research round-up
April’s M.E. research round-up covers studies on: Similarities and differences in CFS/M.E. and MS, Cognitive difficulties in CFS, How do women with CFS/M.E. rate their healthcare? Online patient communities as social movements for change. Read April’s research round-up