Reblogged: Enforced rest vs chill out time

Great quick blog explaining to healthy folks how our rest isn’t by choice and it’s not even a “duvet day”, it’s because we’re too ill to do anything, and trying to will result in even worse symptoms. Having a chronic illness isn’t a chilled out lifestyle choice, it’s debilitating.

My heart is set on living ...

I’ll make this quick for reasons that will become apparent. I wrote yesterday about putting myself into ‘Standby’ mode.I realised that I could’ve done a better job of explaining that after people told me to enjoy my rest and relaxing time, and that I’ve earned it.

I’m not managing to do a great deal this weekend and I’m mostly lying about in bed. If you have a busy life working or parenting or whatever, then that might sound ike an attractive proposition. However, I’m not happily ‘chilling out’. I’m stuck in bed because my body isn’t capable of doing much else at the moment. It’s frustrating, dull and impractical. Alas, it’s not fun.

My symptoms are numerous and can vary wildly at any given time. This weekend’s particular version of ‘standby’ mode essentially involves feeling really ‘shite’, due to nausea, pain, palpitations and breathlessness, and with fatigue, some unsteadiness and…

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Reblogged: Chronic illness and the loss of self

“It was like someone had come along and cut out part of my intelligence while I slept.”

Laura very eloquently writes about the huge losses a person with M.E. has to grieve much better than I could. The things that make up our identity as people, such as careers, hobbies, intellectual ability and more, are taken away from us. We have to find new things and new ways of seeing ourselves but our lives are changed forever by this illness. Thank you to Laura for putting it all so well.Read More »