Action for M.E.’s Big Survey on living with M.E./CFS in the UK asks about our experiences with health, education, employment and welfare benefits. Our answers will influence their strategy and inform their work for the next five years. The deadline for completing the survey is Friday 2 August 2019. Go to the survey
This M.E. research round-up covers studies published up to 16 January 2018: Diagnostic and research criteria, The energy-envelope theory, Factors such as healthcare affecting illness severity and length, Course of illness, Energy metabolism in the brain. Read the research round-up
This M.E. research round-up covers studies published up to 16 October 2017: Defining M.E./CFS, Patient surveys after using CBT, GET and pacing, Brain activity in adolescents with CFS, Recovery in M.E. and CFS. Read the research round-up
A few weeks ago I bought a mobility scooter and it’s been life-changing! Here’s a blog about what I’ve been able to do since and how it’s made my world so much bigger and better.Read More »
Yesterday I attended the most exciting event in my 2016 calendar – the launch of Action for M.E.’s new five-year strategy at Speakers House at the Houses of Parliament in London.
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You might think you know about M.E. already but there are a lot of myths about the illness portrayed in the media. May is M.E. awareness month, so I thought I’d try to dispel some of these myths with the facts about the illness.
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My blog post Please let me know how your pharmacy helps has generated lots of useful comments. As the next step in preparing the resource for pharmacists I’m working on with Action for M.E., I’m asking what you’d like to see in the resource as it’s important to me to have your views on it.Read More »
I thought I’d bring together some of the discussions I’ve had on Twitter today about writing accessible blog posts for people with M.E. Yes – a blog post about blog posts!Read More »
“It was like someone had come along and cut out part of my intelligence while I slept.”
Laura very eloquently writes about the huge losses a person with M.E. has to grieve much better than I could. The things that make up our identity as people, such as careers, hobbies, intellectual ability and more, are taken away from us. We have to find new things and new ways of seeing ourselves but our lives are changed forever by this illness. Thank you to Laura for putting it all so well.Read More »