It’s M.E. awareness month, and we’ve been taking #ThisisME selfies describing how our M.E. affects us.
Taking part in this campaign and sharing other people’s #ThisisME selfies has made me reflect on how far I’ve come but there are so many more people still experiencing severe M.E., unable to do everyday things for themselves and being house- or bed-bound.Read More »
In my talk Living With Pain on 7th February, I referred to several studies and other resources. Here are links to these and some additional ones on living with pain and hidden chronic illness, and improving our care. Read More »
I’ve written a case study on the difference the charity Pharmacist Support has made to me, to show how donations can transform the lives of pharmacists with disabilities. When I see other people in my situation, I feel very fortunate to belong to a profession that looks after peers who fall on hard times, especially when I see the love for the charity on social media and pharmacists’ fundraising challenges.
The film includes clips from the video journal of director and US M.E. advocate Jennifer Brea since she became ill with M.E. in 2013, along with interviews with some of the other 17 million people worldwide with the illness, exploring their experiences with healthcare and the impact M.E. has had on their lives.Read More »
I’ve written this blog post as part of the Hidden faces of M.E. campaign. This is a week of blogs, videos and selfies by people with M.E. and Action for M.E. to help people understand the reality of living with the illness.
We’ve had lots of ideas and discussions about how I can use my skills and experience with the charity and now that we’ve had the chance to consolidate them, I want to tell you just what I’ll be doing in my role as Volunteer Pharmacist & Research Officer for Action for M.E.
It’s very hard for me to talk about my M.E. story because it brings back lots of bad memories of each time I relapsed without knowing what was wrong with me. I’d really like to tell it though, so I’ve decided to focus on one aspect of it at a time.
This piece is about the effects on my education and the help I eventually received in the form of reasonable adjustments and mentoring.Read More »