2016 was a bumper year for M.E. research, so what needs to happen next to ensure this progress is built upon to improve the lives of the 17 million people with M.E. worldwide?
There’s a gaping chasm between what’s provided and what people with M.E. need. From where I’m sitting, as a patient first and health professional second, the only way to get what we need is to collaborate. In this blog I show the ways patients are becoming more involved in research and healthcare.Read More »
Yesterday I attended the most exciting event in my 2016 calendar – the launch of Action for M.E.’s new five-year strategy at Speakers House at the Houses of Parliament in London.
In March I interviewed Professor Davey Smith to find out what his specialism of epigenomics could bring to the UK CFS/M.E. Research Collaborative’s Grand Challenge and what this method of research could reveal about M.E.Read More »
I’ve blogged about three ways we can have our say about M.E. treatment in the UK, so I thought I’d make a summary.Read More »
I’m working with a national M.E. charity, Action for M.E., as Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E.
I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E. and addresses the issues pharmacy professionals need to know about our illness in order to make pharmacy services accessible and useful.Read More »
The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.Read More »