This M.E. research round-up covers studies published up to 16 June 2017: The genetics of fatigue, Sleep patterns in teenagers with CFS, Sub-groups by comorbidities, Gut bacteria and irritable bowel syndrome in M.E./CFS, Similarities with other neurological illness, Experiences of healthcare: two studies. Read the research round-up
How can we become more empowered, and what do health professionals need to know to enable this?Read More »
Being awarded PIP at long last has opened up lots of other help such as travel cards, a blue badge and discounts for those who help me when I’m out and about.Read More »
Although there might not be a new treatment to add to the NICE guideline for CFS/M.E., there’s more to healthcare than cures. NICE has decided that the guideline won’t be reviewed, even though it is 10 years old. This decision has gone out to consultation for the next 2 weeks. Just as NICE decide not to review their recommendations, the Centre for Disease Control and Prevention in the US removes CBT & GET as its recommended treatments for M.E./CFS.Read More »
A few weeks ago I bought a mobility scooter and it’s been life-changing! Here’s a blog about what I’ve been able to do since and how it’s made my world so much bigger and better.Read More »
On Friday I watched the award-winning documentary Unrest at Sheffield Doc Fest.
The film includes clips from the video journal of director and US M.E. advocate Jennifer Brea since she became ill with M.E. in 2013, along with interviews with some of the other 17 million people worldwide with the illness, exploring their experiences with healthcare and the impact M.E. has had on their lives.Read More »
Since the launch of M.E./CFS: a guide for pharmacy teams, it’s been shared by a national community pharmacy organisation and has featured in a magazine.Read More »
The M.E./CFS guide for community pharmacy teams which I have been working on with Action for M.E. is now available online.
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