This week has been NHS Experience of Care Week, and on Wednesday evening there was a Twitter storm where patients, carers and health professionals were encouraged to share their evidence about experiences of care in the NHS, using the hashtag #ExpOfCare. Here’s a summary of my tweets and those of others with M.E. who have joined in this week.Read More »
This is a guest blog for M.E. awareness month by Anna Wood, a severe ME veteran of 8 years and physics education researcher. Anna writes about how work defines our identity and how not being able to work due to M.E. affects this.Read More »
The first guest blog for this year’s M.E. awareness month is by Pippa from Spoonie Survival Kits, little bags of happiness that act as a pick-me-up on harder days. Pippa writes about studying with M.E., starting the Spoonie Survival Kits fundraising venture, and how you can support the project.Read More »
Percy came to me to tell me about a good experience at his pharmacy, and that he wished every interaction with a healthcare professional about self-harm was as non-judgemental and respectful. Percy has very kindly shared the experience, so that pharmacy professionals can learn from this.Read More »
Johnathan Laird, 2015 regional winner for Scotland of the Royal Pharmaceutical Society’s I Love My Pharmacist competition, has kindly posted my comments about learning from patients and respecting them as empowered decision-makers about their health as a guest blog on the Pharmacy in Practice website.
Thank you for linking to Action for M.E., and for being so supportive of M.E. awareness campaigns, Johnathan.
There are some valuable lessons to be learnt from them. I was appalled to read that Alison’s GP asked her if she was “trying to collect illnesses”. Unfortunately, I’ve had similar experiences as a patient over the years with my M.E. and other health problems.
I hear the same from many of the people with chronic illnesses on social media. If someone has been spoken to like that when all they were doing was being an empowered patient then really, it’s no wonder people hide their medication problems and health concerns.
This can lead to complete avoidance of health services altogether. I fear the result of this could be that patients with genuine health problems may be putting up…
I’ve written this blog post as part of the Hidden faces of M.E. campaign. This is a week of blogs, videos and selfies by people with M.E. and Action for M.E. to help people understand the reality of living with the illness.
It’s very hard for me to talk about my M.E. story because it brings back lots of bad memories of each time I relapsed without knowing what was wrong with me. I’d really like to tell it though, so I’ve decided to focus on one aspect of it at a time.
This piece is about the effects on my education and the help I eventually received in the form of reasonable adjustments and mentoring.Read More »
There are lots of very good blogs about living with M.E. and a great place to start is Sally Burch’s May 12 Blog Bomb. This is a page with links to great awareness blog posts people have written for M.E. Awareness Month, 2015.Read More »
I am in the process of preparing a resource for pharmacists on the long term physical illness myalgic encephalomyelitis, with the support of Action for M.E., but in the meantime, here’s a post I wrote for Severe M.E. Day. The most severe form of the neurological illness affects 1 in 4 M.E. patients. Read More »
“It was like someone had come along and cut out part of my intelligence while I slept.”
Laura very eloquently writes about the huge losses a person with M.E. has to grieve much better than I could. The things that make up our identity as people, such as careers, hobbies, intellectual ability and more, are taken away from us. We have to find new things and new ways of seeing ourselves but our lives are changed forever by this illness. Thank you to Laura for putting it all so well.Read More »
Sally Callow, a.k.a. @MEFoggyDog, who created Foggy’s World Tour to help raise funds and awareness for the ME Association, has written a guest blog post on a prominent community pharmacist’s blog to raise awareness of M.E.
Imagine having an invisible debilitating illness; having no idea what caused it and having no prognosis? Welcome to the world of M.E.
My name is Sally Callow and I am both a M.E. advocate and M.E. sufferer. I have created Foggy’s World Tour; a social media campaign to help raise funds and awareness for the ME Association in the UK.
Slowly but surely, I am educating non sufferers on the true nature of this dreadful illness. I have had Myalgic Encephalomyelitis (M.E.) for 7 years; luckily I am a mild sufferer and am still able to work full time.
Foggy has been very well received, and using a soft toy to raise awareness has helped to keep the campaign positive; it would be so easy to sink into the depths of negativity when highlighting the plight of many severe sufferers, many of whom are bed or house bound; I felt…
Anyone wishing to know more about the illness M.E. can follow the Twitter hashtag #MEawarenesshour 8-9pm on Wednesdays to read awareness messages from people with the illness. This initiative was created by Amanda Carroll, who has M.E. For more info, click the link below.
I went out for an early evening drink with a friend I hadn’t seen for ages.
That doesn’t sound all that unusual but for those of you with M.E., you’ll understand how out of reach such a normal activity can be for us. I’ve only had enough of an improvement in my symptoms to be able to do this again lately.Read More »