Guest blog about patient experiences on Pharmacy in Practice website

Pharmacy in PracticeJohnathan Laird, 2015 regional winner for Scotland of the Royal Pharmaceutical Society’s I Love My Pharmacist competition, has kindly posted my comments about learning from patients and respecting them as empowered decision-makers about their health as a guest blog on the Pharmacy in Practice website.

Thank you for linking to Action for M.E., and for being so supportive of M.E. awareness campaigns, Johnathan.

Emily Beardall Emily Beardall

THANK you to Alison and Ian for sharing their stories in the article: Non-adherence and the things that people don’t tell us about their medicines! even though it’s not their names.

There are some valuable lessons to be learnt from them. I was appalled to read that Alison’s GP asked her if she was “trying to collect illnesses”. Unfortunately, I’ve had similar experiences as a patient over the years with my M.E. and other health problems.

I hear the same from many of the people with chronic illnesses on social media. If someone has been spoken to like that when all they were doing was being an empowered patient then really, it’s no wonder people hide their medication problems and health concerns.

This can lead to complete avoidance of health services altogether. I fear the result of this could be that patients with genuine health problems may be putting up…

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Studying with M.E. – The proudest day of my life and my struggle to get there

My graduation day
Master of Pharmacy graduation, Summer 2012

It’s very hard for me to talk about my M.E. story because it brings back lots of bad memories of each time I relapsed without knowing what was wrong with me. I’d really like to tell it though, so I’ve decided to focus on one aspect of it at a time.

This piece is about the effects on my education and the help I eventually received in the form of reasonable adjustments and mentoring.Read More »

Reblogged: Chronic illness and the loss of self

“It was like someone had come along and cut out part of my intelligence while I slept.”

Laura very eloquently writes about the huge losses a person with M.E. has to grieve much better than I could. The things that make up our identity as people, such as careers, hobbies, intellectual ability and more, are taken away from us. We have to find new things and new ways of seeing ourselves but our lives are changed forever by this illness. Thank you to Laura for putting it all so well.

Laura's pen

I recently watched a BBC drama/filmQuote from the Green Mile called ‘The C word’, about a woman called Lisa Lynch who had breast cancer and blogged her way through it with charm, heart-breaking honesty and wit.

I instantly regretted watching it on my own, I cried my eyes out for roughly one hour of the hour and a half. It was Les Misérables all over again, except this time Ivan wasn’t laughing at how violently I was sobbing beside him, body heaving with each cry of anguish, for I had chosen to watch this alone.

But this was a bit different. Yes I was crying because the story was sad. Yes that was worse because the story was true. But the worst thing was this: it reminded me far too much of my own life.

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Reblogged: Guest post for M.E. awareness on prominent pharmacist’s blog

Sally Callow, a.k.a. @MEFoggyDog, who created Foggy’s World Tour to help raise funds and awareness for the ME Association, has written a guest blog post on a prominent community pharmacist’s blog to raise awareness of M.E.

johnathanlaird.com

Imagine having an invisible debilitating illness; having no idea what caused it and having no prognosis? Welcome to the world of M.E.

My name is Sally Callow and I am both a M.E. advocate and M.E. sufferer. I have created Foggy’s World Tour; a social media campaign to help raise funds and awareness for the ME Association in the UK.

Slowly but surely, I am educating non sufferers on the true nature of this dreadful illness. I have had Myalgic Encephalomyelitis (M.E.) for 7 years; luckily I am a mild sufferer and am still able to work full time.

Foggy has been very well received, and using a soft toy to raise awareness has helped to keep the campaign positive; it would be so easy to sink into the depths of negativity when highlighting the plight of many severe sufferers, many of whom are bed or house bound; I felt…

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