When I applied to work voluntarily with Action for M.E. I told them about a project I’d really wanted to do which I’d had difficulty getting off the ground due to various problems, like not being well enough at the time to get on with it! For a year or so I’ve been wanting to put together a guide to M.E. for pharmacists, to raise awareness of our illness within my profession. I’d like to help fellow pharmacists to understand our illness and the part they can play in our care. Now that I have the support of Action for M.E. with this project, I’d really like to make a start.
I want the Guide to M.E. for Pharmacists to contain information that people with M.E. are happy with, so I’ll be asking for your suggestions while putting it together.
Firstly, I’d like to ask,
How has your pharmacist or pharmacy team helped you?
I’ve had some great chats on Twitter with some examples of best practice. I think it will both help pharmacists to understand our needs and to show others with M.E. the sort of things pharmacists and pharmacy support staff can help with. It can be anything they have done as part of the care they provide you, such as answering medication queries, giving advice, making it easier to take (or remember to take) your medication, prescription delivery or just being a listening ear. Of course, if you think there was something that could have been done better, I’d like to hear that too.
You can remain anonymous, of course, but you might like to give your email address where it asks if you’re happy with me contacting you for more details at a later stage, for example, to ask permission to quote your comment in the guide or if I put together some anonymous case studies.
The deadline for submitting your suggestions is 26 October 2015. Although the comment sections on the blog posts will remain open after this date, from that point onwards we will be moving onto the next stage of developing the resource. If you’d like to write a more detailed guest blog post, that would be great, and you can contact me if there’s anything you’d like to ask.
I’ve started a separate post for your tips for remembering medication, so if you’d like to share yours, you can add them to help others with the illness.
If you have any specific queries about your own medication, please ask your pharmacist or GP and please do not stop taking your medication without talking to your GP first.
Comments will be moderated and all views will be respected.
Thanks in advance for your help!
P.S. There is now a post asking What would people with M.E. like to see in a resource for pharmacy professionals?